Health AI Hub Collaboratory Rounds bring together experts and practitioners to share and  explore various aspects of AI lifecycle management in healthcare. These monthly gatherings are designed to keep you informed about the latest trends, best practices, and challenges in the dynamic field of healthcare AI.

Date and Time
October 30 from 3:00 PM to 4:00 PM EST

Topic

Tangled In The Web: Patient safety & privacy concerns when seeking knowledge, community, and support online

Register in advance for this meeting here

After registering, you will receive a confirmation email containing the link to join the meeting.

Speakers

Christine Von Raesfeld, Board Member, The Light Collective

Christine Von Raesfeld (she/her) is a pillar of patient advocacy and allyship in the rare and chronic disease community working as a Board Member of The Light Collective, and also with Research To The People. Through the lens of her lived experiences in health care, she has become a champion for patient voices, diversity and inclusion in clinical research, and equitable patient–sponsor partnerships.

Valencia Robinson, Director of Community Outreach, The Light Collective

Valencia Robinson is a nationally recognized advocate and founding member of The Light Collective.  She serves on the Boards of the National Breast Cancer Coalition, and the Florida Breast Cancer Foundation.  Recognizing the need to address disparities for women of Color, Valencia founded the Women of Color Wellness Alliance in 2022.

Andrea Downing, Co-Founder & Board President, The Light Collective

Andrea Downing is the co-founder and Board President of The Light Collective. She has been a prominent figure in health privacy research, focusing on the implications of technology and social media on patient data privacy. One of her notable contributions is her work on the security vulnerabilities within “private” Facebook groups, which had significant privacy implications for health-related support groups.

Session Description
In an era in which technology increasingly intersects with healthcare, understanding the perspectives of those most affected is paramount. The Light Collective, an organization dedicated to amplifying the collective voices of patient communities in health technology, has taken a crucial step towards broadening this understanding. This community-led survey sheds light on the complex relationship between patients, patient advocates, caregivers, and the digital world they navigate as they seek to understand and manage their health conditions or those of people for whom they care or advocate.

Read the report here.

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past health AI hub